Challenges of doing research that involves patients

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11th International Symposium on Human Factors in Organisational Design and Management (ODAM 2014) CPH Conference

Challenges of doing research that involves patients
Paper
Author:Peter HOONAKKER (Center for Quality and Productivity Improvement, University of Wisconsin-Madison, United States)
Pascale CARAYON (Department of Industrial and Systems Engineering, University of Wisconsin-Madison, United States)
Ann Schoofs HUNDT (Center for Quality and Productivity Improvement, University of Wisconsin-Madison, United States)
Randi CARTMILL (Center for Quality and Productivity Improvement, University of Wisconsin-Madison, United States)
Dan NATHAN-ROBERTS (Center for Quality and Productivity Improvement, University of Wisconsin-Madison, United States)
Date: 2014-08-18     Track: A -Special sessions     Session: A1 - Health care symposium part I: Patient centered care
DOI:10.4122/dtu:2126

Several influential groups (e.g. Institute of Medicine) have emphasized the importance of capturing patients’ perspectives, as they are encouraged to become more actively engaged in their healthcare. Likewise, human factors researchers are increasingly focusing on the role of the patient. Doing research that involves patients can be challenging. Based on the literature and our own experience we illustrate some of these challenges. We also emphasize the benefits of directly involving patients in human factors research.